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BKC News Bytes - AB Calgary & Area

Calgary, Cayley, Chestermere, Crossfield, Dalemead, High River, Longview, Morley, Priddis, Airdrie

Wednesday, 21 May 2014 00:00

Time is Precious for Canadians with Cystic Fibrosis

rfbol logo1Join the Ride for the Breath of Life in Edmonton! 

Saturday, June 21, 2014 

Edmonton, Alberta (May 20, 2014) – On Saturday, June 21, Cystic Fibrosis Canada’s Northern Alberta Chapter will hold the annual Ride for the Breath of Life to help raise funds to improve the lives of Canadians living with cystic fibrosis. 

Cystic fibrosis (CF) is the most common fatal genetic disease that affects Canadian children and young adults. There is no cure. Each week in Canada, two children are diagnosed and one person dies from this disease. Last year, half of those who died were 34 years old or younger. SEE PAGE 3 FOR A FULL PERSONAL BIO 

"Too often, Canadians with cystic fibrosis are robbed of their most vital years”, said Scott Hanna, volunteer President at Cystic Fibrosis Canada’s Northern Alberta Chapter. “Please join the fight against cystic fibrosis by sponsoring or registering for our Ride for the Breath of Life in Edmonton”. 

Every year, riders from all backgrounds rev up their engines in support of cystic fibrosis research and patient care. The Ride for the Breath of Life is a motorcycle ride that takes place between May and October at various locations across Canada. Since its inauguration in 1985, the Ride for the Breath of Life has achieved enormous success, raising over $500,000 in life-changing funding for Canadians with cystic fibrosis. To register, sponsor or join a team, visit www.rideforthebreathoflife.ca

rfbol logo1

EVENT: Ride for the Breath of Life, Cystic Fibrosis Canada 

DATE: Saturday, June 21, 2014 

TIME: 10:30 AM 

Ride Day Information: 

Location: TEMPO - Country Boyz: Hwy 16 & RR223 

(just east of Sherwood Park - head 3 miles east on Hwy 16 from Hwy 21) 

Meet us at our final destination, Lakedell Agricultural Complex (about 5 minutes west of Falun Community Hall) and enjoy lunch and an awards presentation! 

Cystic Fibrosis Canada

Agenda: 

8:30AM – Registration 

10:30AM - Ride starts 

~1:30PM - Ride ends at Lakedell Agricultural Complex 

- Poker Rally - $25/hand (cash prizes) 

Cystic Fibrosis 

Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus and protein also build up in the digestive tract, making it difficult to digest and absorb nutrients from food. As improved therapies have helped to address the malnutrition issues, ultimately most deaths related to cystic fibrosis are due to lung disease. There is no cure. 

SEE PAGE 3 FOR A FULL PERSONAL BIO 

Cystic Fibrosis Canada 

Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis and is an internationally-recognized leader in funding CF research, innovation, and clinical care. We invest more funding in life-saving CF research and care than any other non-governmental agency in Canada. Since 1960, Cystic Fibrosis Canada has invested almost $150 million in leading research, care and advocacy, resulting in one of the world’s highest survival rates for Canadians living with cystic fibrosis. For more information, visit www.cysticfibrosis.ca 

NOTE TO MEDIA: B-roll footage of Canadians with cystic fibrosis and photographs are available at http://www.vvcnetwork.ca/cf/20120501/. 

For more information, please visit: 

Ride for the Breath of Life at www.rideforthebreathoflife.ca 

Cystic Fibrosis Canada on Facebook at www.facebook.com/CysticFibrosisCanada 

Cystic Fibrosis Canada on Twitter at www.twitter.com/CFCanada, hashtag #Ride4BreathLife. 

For more information, contact: 

Kathy Irvine at This email address is being protected from spambots. You need JavaScript enabled to view it.; 780-466-2265 

OR 

Ryan Degenhardt at This email address is being protected from spambots. You need JavaScript enabled to view it.; 780-886-0931 

-3- 

FULL PERSONAL BIO 

My name is Katrina Douglas, but my friends calls me Kat for short. I'm 21 years old, I am a student at Grant MacEwan University in the massage therapy program and I'll be graduating this June. My mom found out I had cystic fibrosis when I was 3 months old and from then on went into super-CF-mom mode. Learned all the treatments, memorized pills schedules and was meticulous about everything. She's probably the reason I've gotten this far. 

I was hospitalized once when I was 3 years old and then I was good until the teen years when I was 14 I was hospitalized again. At 16 I got pneumonia and nearly died but I was stubborn (or naive) and came out great. I was fine again for years until University started; since university started I've struggled with my weight and lungs. I was working and taking 7 courses and basically being a normal university student, but the difference with me is I can't do everything. I got run down way faster than my friends did and ended up in hospital but still managed to go to most of my classes. Now I get intravenous treatments every 40-60 days, usually at home and I still attend most of my classes, write all my exams and do all the assignments. 

I live at home so I don't work because I really can't until I'm done school probably. I have siblings; a brother and sister who are both 12 and both bigger than me because we have different dads and they didn't get CF. My mom still nags me about things but since I'm an adult in the adult clinic you have to take over everything your mom did so now I memorize schedules and pills and treatments. I'm engaged also and he's taken on the role my mom did: reminding me to take my pills, memorizing the names of everything, doing my physiotherapy. 

I started fundraising when I was little. My family took me in a wagon on the walk for cystic fibrosis every year, but now we have a team and my friends have joined in and I plan events now to bring in more money. My hopes for the future of cystic fibrosis is to see everyone live longer, go to school, get married, travel, maybe have kids if thats their thing; but really just be free. We have a huge support system online and when someones really sick everyone knows about it so it gets tough seeing it all the time. 

I wonder about my own future often, but I'm stubborn, and I have a huge support system so I think I'll be okay.

Last modified on Thursday, 19 June 2014 16:02

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